Relapsing Polychondritis (RP) is a rare, progressive condition characterised by recurrent episodes of inflammation of cartilaginous structures. These include the ears, nose, upper respiratory tract, chest wall and joints.
The international RP-QoL study, developed through ERN ReCONNET, has entered its final validation phase. This landmark project is creating the first quality-of-life tool designed specifically for people living with Relapsing Polychondritis. If you have a confirmed RP diagnosis, your participation can help shape future research, treatment evaluation and care.
Quality of Life in Relapsing Polychondritis
ERN ReCONNET has released an important webinar exploring how RP affects daily life, based on data from 274 patients across 22 countries. The findings are helping shape the first RP-specific quality of life tool and improve future research and care.
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