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Welcome!

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   The aim of this website it to share information about this rare disease and offer support to those living with RP or struggling to get a diagnosis. 

 

   Some of you may already know us from one of our Facebook Groups which have over 2,000 members and we want to thank you for coming to take a peek at our website. 

 

   We hope you will become regular visitors and that we can to know all of you RP’ers out there - we are sure there are many more of us yet to be diagnosed!